My friends, tomorrow we are taking our Earlybird into Children's Hospital for a second EEG attempt. (You might remember the first try went badly.) This time they are going to set him up with an "ambulatory eeg", meaning, he'll wear the whole kit and kaboodle home (electrodes, helmet), and then the test will (hopefully) record as he sleeps overnight ...
I am trying very hard to stay positive and not "stew" in my worry, but I'm having a hard time seeing how this will work. I am hoping that he will be able to withstand it all - we're asking a lot of our sensory-challenged boy! And right now I'm praying we find the strength and patience to guide him through it as smoothly as possible. I need to find words and actions that will soothe and support. I need to maintain an energy that is loving and firm. I need to keep my wits about me and remember that, above all, I am this child's mother, and I know him better than anyone.
All this to say ... I'd be so grateful if you would keep our EB in your prayers tomorrow ... it will be a tough day for us all, and I might not get on here for a bit. But I will post an update just as soon as I can.
Thank you, my friends ... blessings to you and your loved ones ... I'll see you here again very soon.