Hello my friends, and Happy Tuesday! Tonight I thought I'd share a quick EB report with you all, to follow up on my post from last week and let you all know how his much-anticipated shopping trip went!
Well, I'm very glad to tell you - it went very, very well. :) EB had worked on a list of things to buy, and he had the $25 gift card he earned by doing all those extra chores ... and Thanksgiving was (is) upon us! So, with his ABA therapist along for support, my mum and I took EB to Whole Foods today!
And this was a kind of milestone event for us. It was EB's first time back to this "supersize" Whole Foods in three years, since an epic meltdown that lasted almost half an hour, and took place just inside the doors of this beautiful (crowded, colorful, noisy) grocery store. Our then 12 year-old-son had had public meltdowns before, but it was this particular experience that made us realize EB needed serious help - something way beyond what we were able to give him ourselves, or even knew how to find for him at that point ...
It was around this time we'd just started working with a neurologist (EB had recently developed a seizure disorder) and this man was (and is) just an incredible doctor. He's the kind of professional who's comfortable getting personal, if you are fortunate enough to know what I mean. At our first meeting at Children's Hospital (after EB's first grand mal seizure) and in subsequent office visits, Dr. Peter quickly became one of EB's "best friends." He always took his time with us, allowing EB his quirks (for example, doing vitals in the waiting room when the hallway was just too much to face), and really seeking to understand our child - and our family. To use a phrase I use often in reference to my children's developmental and educational needs, Dr. Peter "met us where we were at" and determined it was time to get EB some home therapy. (EB's anxiety was growing after several poor experiences with ill-matched doctors and therapists. He was steadily developing a fear of any kind of medical appointment, but visiting Dr. Peter in Boston really turned things around for our son.)
Anyhoo, six months later we were hooked up with a kind of therapy (and therapists) that just worked for EB ... and finally it seemed progress was possible. And in fact progress was being made every day - albeit in the tiniest of steps. We first worked on simple compliance and basic self-care ... and then a whole big list of hopes and dreams started to form ... things we wished for our son one day. We've done some of those things (bike riding, haircuts, a full physical at his pediatrician), but it's a long list, and we still look forward to doing things like: going to a movie, visiting a museum, riding a train ... learning to swim!!
Well, after that Whole Foods fiasco in early 2014, it was six long months before EB was able to handle being out in public again. It's a very big part of his therapy - helping EB become a confident and productive member of society, but we started very small ...
For example, we visited a local (tiny, quiet) mom-and-pop grocery to buy ... one pear. And that's all we did - walking in (with his therapist), going right to the produce department (knowing it was just inside the door), choosing one pear, bagging it, buying it ... and then heading right back to the car. And that was SUCH a success. (As in, it went smoothly AND we were so proud!) The next week we tried again and this time EB had a list of three (preferred) items ...
And happily, that day went well, too!
It has not always gone smoothly, however - we've hit snags and plateaus and Earlybird has struggled at times with ongoing sensory challenges and new irrational fears - but things have gotten steadily better these past three years. So much better that today - just two days before a major holiday, I felt (relatively) confident that Earlybird would be able to handle a short trip to this superstore in order to do his part for our family's Thanksgiving meal. He was motivated, we were prepared, and - most importantly - we had support. And it was a wonderful time!
So if I may, here are some pictures of our morning. Yes, I'm the crazy mama who takes pictures of her kids doing the silliest of things - like pushing a grocery cart - but you and I both know that even the most seemingly mundane things can be incredibly meaningful. ❤
Ok, here we go ...
First of all, it was a beautiful day! Sunny and oddly warm for November in New England. And as you can see, EB was all (tentative) smiles heading inside.
And yup - it was just as busy as we expected! We had to pass through a waft of holiday music being piped in near the entrance - I cringed because music is a tough thing for Earlybird - but he didn't even blink.
Safely inside the store, here's EB choosing pears ...
And crackers ...
Cart full of his goodies, EB was ready to head to the registers!
On his list EB had: pear juice, lemonade, mac and cheese, corn muffins, ice cream, crackers, pears and flowers. Impulse items included turkey legs (for Nana to make gravy), a science magazine, and a turkey cookie for Little Bear. :)
EB with his beloved Nana, my Mum - how much she means to us all. <3
And here's Mama with her Earlybird. (If you knew me well you'd know that's my ... "we're almost done, he's done so well, let's not push it" smile.)
I'm just so proud of this boy!
And a hug for his therapist, Michael - an extremely kind and patient man. He has a wonderful way with our son!
Getting ready to pay with his Whole Foods "credit card" ... (The bill came to be more than $25, so I gladly "spotted" him the extra cash!)
The only thing on his list that we didn't get was flowers ... and only because it was WAY over on the other side of the store and we were right there at the registers and I decided it was best to leave on a high note. I assured EB I'd pick up flowers while out shopping tomorrow morning ... because yes, I'm heading out tomorrow to get the final items we need for our dinner!
In addition to shopping (super early, coffee-in-hand shopping) there will be much to do here tomorrow - and I'm counting on lots of help from my boys! (And Bill, who's working from home.) Things like: cleaning of bathrooms, setting of tables, cooking of cranberries, and bathing of children ... oh, how I love getting ready for a holiday!
Well my friends, thank you very much for joining me here tonight and sharing in our joy for Earlybird. He's been on a long and slow road, but we are seeing such progress and have so much hope for our boy! I'll keep you all updated on his "adventures" as I can ...
But for now I will wish you all a pleasant evening and a very happy Thanksgiving Day - if you celebrate - but a day full of blessings, regardless ...
Here's to counting all of our blessings, the big and the small! ❤