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Full Disclosure Friday: Progress Not Perfection

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Happy Friday, my friends! I hope this week has been good to you. I'm sorry my posting has been rather sluggish lately - we've been in a rather busy pattern lately. But as we near the end of the year I feel my schedule is finally starting to smooth out a little. :)

So today, in the spirit of full "Friday" disclosure, I'd like to share another glimpse into our special needs family life. We've had some significant changes to our therapy situation recently, coming at a time when Earlybird is really struggling with a variety of challenges, and adjusting to a new (and first ever) behavioral medication. One beloved therapist moved away, and a new one began ...

But with change comes renewal, and with fresh perspective comes hope!

We've also been granted more ABA hours so Earlybird is now getting more therapy assistance than ever - and this includes weekends! This development could not have come at a better time, and with the med we started him on this spring we've been seeing some subtle improvements. Overall then, after a bit of upheaval, we are getting ourselves (and our boy) back on (a really good) track!

Now, I try to keep things as real as possible here. Yes, I like to focus on the positives, but I think there is also much to gain in sharing our tough times. Fittingly, this post highlights both sides of our autism journey. Oftentimes a new success highlights the larger struggle still looming - so though we're ever mindful of keeping perspective, it's so important to celebrate every step, no matter how small. 

So  ... yesterday, we braved Target together, Earlybird and me (and his therapist).

And this might seem like the most common of events - shopping at Target - but let me tell you, it was anything but! For Earlybird, managing a place as over-stimulating as Target is a real emotional and physical challenge. But, with Little Bear's birthday coming up, he really wanted to pick out his own gift ... ๐Ÿ’™

A bit of back story, first:

I shop at Target all the time, but it had been 6 years since Earlybird last stepped foot in this place. That time he was much smaller, but his meltdown was HUGE. (Wailing and thrashing-on-the-floor, security-alerting huge. ๐Ÿ˜ณ) That day sticks out as one of those memories we point to when confessing just how very hard things can get. (I think most autism families have them.)

Well, yesterday, with the support of our ABA therapist, our boy returned to that very same store to buy his own โ€œperfectโ€ present. He'd been talking about it for weeks, but to keep it as simple as possible, we prepared an "action card" for him. On it was listed three things:

  • present
  • card
  • gift bag

ALL DONE โˆš

The good news is ... he did it!! We made it through the store and he completed his card.

The less-so-good news? He struggled the whole time ... and mightily.

The parking lot was busy, the cart was noisy, and just inside the doors, he stopped and said, โ€œI want to go home.โ€ But with the encouragement of our therapist, we got him moving and directed him straight to the toy aisles.

Oh, he balked, he fussed - he even yelled and stomped! But 10 (loooong) minutes later, we were back in my van headed home. ๐Ÿš™ ๐Ÿ’จ

Of course that was not a fun ride ... because EB's emotions boiled over and he really let his anger and anxiety loose in the backseat. (Thank God for our therapist!)

Were my nerves frayed? You bet. But was the mission accomplished? Yes.

So we're calling it a win. :)

Folks, donโ€™t ever take the โ€œeverydayโ€ things for granted - the things you or your children can do without a worry or second thought. Be grateful for every mundane and meltdown-free moment. And celebrate every hard-won success!! #progressnotperfection

I am SO GRATEFUL for the support we receive and the hope we keep kindled in our hearts. ๐Ÿ™๐Ÿป We are so blessed by this boy whose heart is pure gold and whose hopes are the same as anyone elseโ€™s: to be loved, and live a meaningful life.

Is shopping at Target meaningful? ๐Ÿค”

Well, it sure can be! Because our son faced his fears so he could buy his own gift for his brother. Those ten minutes seemed eternal to him, but he did it! ๐Ÿ‘๐Ÿป

And I canโ€™t wait to see the look on *both* my boysโ€™ faces when that gift is unwrapped! ๐ŸŽ

Well my friends, thank you so much for stopping in today, and allowing me to share a little of my life as an autism mom. I hope you all have a wonderful weekend, and I will back here again very soon!

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