... and then we hope for compassion and support.
My friends, this morning I'd like to share a beautiful post with you all which was first brought to my attention by my dear cousin Amy, who is also the mother of an autistic child.
So, on this Day of World Autism Awareness, here are 10 Things My Autistic Kids Wished You Knew by Rob Gorski, dad to three autistic boys and author of the blog, Lost and Tired. His autistic kids are different from mine (as all children are different from each other) but I can appreciate the need to express these feelings on behalf of those on the spectrum. And it's a very wide spectrum - from mild to severe with all kinds of issues in between - but all of these kids are challenged in some way. And all of these kids deserve to be understood.
So thank you, Rob, for putting together such a thoughtful and beautiful message.
1. I’m sorry I have fits but I’m not a spoiled brat. I’m just so much younger on the inside than I am on the outside.
2. I’m easily overwhelmed because I see and hear everything. I hear the lights hum and clock tick. Everything is so loud it makes my head hurt all the time and my eyes hurt from all the bright lights.
3. I’m not stupid, I’m actually very smart. I just don’t learn the way you want me to. Please learn about Autism so you know how to help me better understand what you are trying to teach.
4. Please don’t be mad at mommy and daddy because we don’t come over for holidays or birthdays. They really want to go but I don’t do well at another person’s house. It’s too overwhelming for me and they know that. They don’t go because they love me, NOT because they don’t like you.
5. Please have patience with me. I try really hard to make good decisions but I can be very impulsive at times.
6. Yes, I have Autism but that doesn’t mean I’m less of a person because of it. If anything, I’m actually more of a person in spite of it.
7. My house might be messy sometimes. It’s because my mommy and daddy spend all their time trying to find new ways to help me or teach my brother to talk.
8. Just because I can’t talk doesn’t mean I don’t understand what you are saying. My feelings can be hurt just like yours.
9. I wish my mommy and daddy knew how much I love them. I have a really hard time with emotions and I don’t always like to be touched. But I love them more than anything in the world, even more then my Lego’s.
10. I know I can be frustrating but don’t tell me I won’t amount to anything because I have Autism. If you love and support me I WILL do great things in my life in spite of my challenges.
***
(Note: Just to be clear, these are not my words, but, as explained above, a passage written by a father of three autistic boys - for his boys - at his blog. EB might not match up with each of these points, but I know kids who do. And I'd like to think as "autistic parents" we are working for awareness on behalf of all these kids.)
Keeping a positive attitude is extremely important, but the reality is, parenting an autistic child is very hard and often heartbreaking. And in the beginning, when you first get that diagnosis, it can feel very lonely ...
How did this happen? Why must my child have this?
But then you go forward, and you realize (with relief!) you're hardly alone. First of all, there are people all around you who are also dealing with autism, in one way or another, and secondly, there are people in your life who are more than willing to walk your path with you. Maybe to give you a hand or a lift when you need it - or even just to understand where you're at. Having an autistic child means re-setting expectations and maybe doing things "differently," than everyone else (case in point, Disney), and when people are understanding about these choices and needs, it makes SUCH a difference!
It can be hard to ask for help, because sometimes you don't even know what you need or how someone can help, but we must trust our family and friends to understand and support us, just as God trusted us with the life of this child.
And yes, I do believe this - I have to believe this - God chose us for this child:
Hey, this awesome child has the whole big world ahead of him, and we were chosen to help him navigate his way through it. God must have a lot of faith in us to trust us with this honor and challenge!
❤
Well, my friends, I've kept your ears long enough, and I thank you from the bottom of my heart for taking the time to read this. If you know someone who has an autistic child, please pray for them today ... maybe take a moment to learn something new about autism or think about how you can help. And if you are blessed to know an autistic child yourself, please let that child know how much you love him ... but also, how much you LIKE him for who he is. It will mean the world to him ... and his parents. :)
Have a wonderful Monday, everyone ... I will see you here again very soon!
















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